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HomeMy WebLinkAboutCOM 0921.001 2004-2006 fact sheet alzheimer's lV association- Safe Return TM The Alzheimer's Association Safe Return TM program as- WANDERING BEHAVIOR sists in the safe and timely return of individuals with INFORMATION AND TRAINING Alzheimer's disease and related demential who wander One of the most alarming and potentially life-threatening and become lost. behaviors associated with Alzheimer's disease and related demential is wandering. Safe Return TM educates families, Safe Return TM BENEFITS INCLUDE: caregivers, emergency personnel, and other community professionals about how to recognize the signs of demen- IDENTIFICATION PRODUCTS tia, prevent unsafe wandering, and effectively use the Safe Program participants receive an identification bracelet or Return TM program. necklace, clothing labels and wallet cards. These items are inscribed with the toll-free crisis number and alert others that the individual is memory impaired and may need as- sistance. Identification bracelets or necklaces are also available for caregivers to wear to alert others to look after the individual if the caregiver becomes incapacitated. NATIONAL INFORMATION/PHOTO Janet Eli DATABASE President and Chief Executive Officer Registration in a national database that includes important emergency contact information and photograph to help alzheimer's l V association reunite lost individuals with their caregivers no matter where they wander. Aloha Chapter 808 591 2771 p 1050 Ala Moana Blvd., 015 808 591 9071 f 24 HOUR TOLL-FREE CRISIS LINE Honolulu, HI 96814-4924 1 800 272 3900 contact center A nationwide toll-free number is available 24 hours a day, jbendergalzhi.org www.alzhi.org 365 days a year, to contact when an individual is lost or found. FAX ALERT NOTIFICATION SYSTEM A fax alert system is capable of sending missing person information and photos anywhere in the country. LOCAL ALZHEIMER'S ASSOCIATION CHAPTER SUPPORT A nationwide network of over 81 community-based chap- ters provides support and guidance to families and Comm. No. caregivers. Ref. Tor Ref. Date. JUN For More Information, Call www.alzhi.org Aloha Chapter Hawaii Office Maui Office Kauai Office wvvw.aiz.org 1050 Ala Moana Boulevard, D15 P.O. Box 271 1063 Lower Main, C206 P.O. Box 3345 Honolulu, Hawaii 96814 Hilo, Hawaii 96721 Wailuku, Hawaii 96737 Lihue, Hawaii 96766 808 591 2771 p 808 981 2111 p 808 871 5150 p 806 821 1776 p 808 591 90711 808 921 5900 f 808 871 6268 1 808 821 2696 f Alzheimer's disease causes millions of Americans to lose their ability to recognize familiar places and faces. They may become disoriented and lost in their neighborhood or far from home. Although common, safe this behavior can be dangerous, even life-threatening, alzheimerk% association to individuals and stressful for caregivers. retLlrl'1. There is help. The Alzheimer's Association Safe Return" program assists in the safe return of individuals with Alzheimer's or a related dementia who wander and become lost. Assistance Registration Alzheimer's Association Safe Return" is a nation- • Mail completed registration form, payment* wide identification, support and registration and registrant photo** to the address on program working at the community level. the back. Assistance is available 24 hours, every day, whenever a person is lost or found. • To register by phone, call toll-free 1.888.572.8566 (24 hours, every day) with registration and credit When the registrant is missing, Safe Return faxes card information.To register online, please visit the registrant's information and photo to local law www.alz.org/safereturn. Call the 1.888.572.8566 enforcement. When found, a citizen or law official number to update any registration information. calls the 800-number and Safe Return notifies ForTDD service, call 1.888.500.5759. listed contacts. Your local Alzheimer's Association *Registration fee is M. Add $5 for caregiver jewelry. chapter provides support. Write registrant's name on the back ofphoto (not returned). Identification Jewelry Styles With the $40 registration fee, you receive the Please indicate Style A following products": jewelry type and Falzheimer's% association • Engraved identification bracelet or necklace, style. Measure iron-on clothing labels, key chain, lapel pin, safe return wrist for bracelet. refrigerator magnet, stickers, wallet cards Style B and Caregiver Checklist. Instructions: Use • For an additional $5, receive caregiver jewelry." flexible tape measure Safe Return In an emergency, it alerts others that you or encircle with provide care for a person registered in string and measure Safe Return. against reference Style C "Identification products are sent to the physical address of the ruler below. primary contact, unless otherwise indicated. ~U Reference Ruler g4 rr vl; 2" 3rr q.r 5rr Err -.t . Prepared under grant number 96-MU-MU-0009 from the For more information on our Safe Return Office of Juvenile Justice and Delinquency Prevention, program, call your local Alzheimer's Once of Justice Programs, U.S. Department of Justice. PF205C ©1998 Alzheimer's Disease and Related Disorders Association chapter or 1.800.272.3900. Association, Inc. (Alzheimer's Association) All Rights Reserved. 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O N d O C7 O m O m O C m G C7 .C m z O O C N O C N O C G O fN/1 CO Q 0 W R d •R ~ t0 O N N m m O. - E d d O p) a) Z E 'm a ° Y m ° v o E a m m E `o a d m a in o a) m o a) -a _M6 d -o 3 0. •o) v a a v Q U (n F- m <.s z Q U t- ¢ z Q U H cc d cc E Y d ~ -O °f D Q m O tE a ° m ~a 7 CL U) L 'O a a) R d ~ O ~ a7 m m m a) ~O A Z U N 2 m m o 'e R C O ~ O) t+ N ~ r 'O N o Q c a) °o, O LL c CO = C R C C d m oU O E ,C Z O .Y y O a) d O t y ID U ` m u n N Z a7 Q r U c m y _ 'L L m C U Of O y Z m r o E o m r 8 0 d Q d z 3 °a c a) CO p .x Li U " s t F- E m L- O O m Y N a m d y Z c .v a) O. a) L U a) a) U y N L C am. m O to a) ? m O m N 2 i m 01 m a) O U : a oc ii ; Q U cn I- cn o 2 w cc u U v C7 m 0 0 cn v alzheimerrs % association AVAILABLE RESOURCES: Listed below are informative resources available through the Alzheimer's Association - Aloha Chapter. Please check any information you are interested in receiving. Basic Dementia LTC Planning & Respite AD & Related Dementias Fact Sheet -Adult Day Care List _AD Fact Sheet -Assisted Living List _If you have AD -Care Home List -Overview of Alzheimer's Disease -End-of-Life Resources -Stages of Symptom Progression in AD -Financial Issues -Typical Aging, Delirium, Depression, Dementia -Legal Issues -Warning Signs of AD -Nursing Home List -Respite List Caregiver and Family Information -Caregiver Stress Medications -Communication Aricept -Especially for the AD Caregiver Exelon -Feelings Reminyl -Grief -Cholinesterase Inhibitor --Helping Children & Teens Understand -Holidays Personal Care -Hospitalization -Bathing _Long-Distance Caregiving -Dressing -Support Groups _Eating _Travehng -Grooming -Incontinence Challenging Behavior -Late Stage AD -Anger/Agitation -Nutrition -Combativeness -Steps to Assisting with Personal Care _Driving -Hallucinations/Paranoia Other Information: _Repetitive Actions -Screaming _Sexual Expression -Sleep Problems -Wandering/Preventing Wandering I would like to: -Wanting to go Home -have the information mailed to me -Understanding Challenging Behaviors -receive the newsletter Kako'o -schedule an appointment with a social worker Diagnosis -schedule a presentation/training at my place of -Autopsy employment/organization -Geriatric Physicians List -Living with Early-Onset AD I am a: -Family Caregiver -Service Provider -Steps to Getting a Diagnosis -Professional Caregiver -Adult age 65+ -Telling the Patient, Family, and Friends Other Home & Safety Name: -Activities -Enhancing the Home Phone: Date: -Environment -Safe Return Program Address: -Safety City: State: Zip: For More Information, Call www.alzhi.org Aloha Chapter Hawaii Office Maui Office Kauai Office www.alz.org 1050 Ala Moana Boulevard, D15 P.O. Box 271 1063 Lower Main, C206 P.O. Box 3345 Honolulu, Hawaii 96814 Hilo, Hawaii 96721 Wailuku, Hawaii 96737 Lihue, Hawaii 96766 808 591 2771 p 808 981 2111 p 808 871 5150 p 808 821 1776 It 808 591 907111 808 921 5900 f 808 871 62681 808 8212696 1 96 f alzheirneT% % association : The world leader in Alzheimer research and support For more than 20 years, the Alzheimer's Association has provided reliable information, created supportive programs and services for families, increased resources for dementia research, and influenced changes in public policy. The Aloha Chapter was established in Honolulu, Hawaii 1982 and has expanded to include program offices on the islands of Hawaii, Kauai and Maui. Leading the fight against Alzheimer's disease • The Association has awarded nearly $140 million to researchers seeking new methods of prevention, better treatments, and eventually a cure for Alzheimer's • The Association is an influential, nationwide network that includes the national office in Chicago, the public policy office in Washington, D.C., 81 Chapters, and more than 220 local points of service. • Our annual Memory Walk, held in about 600 communities nationwide, has raised more than $165 million for programs and services. Supporting the research community The Association's research program is a catalyst for generating new knowledge about Alzheimer's disease and other disorders that cause dementia. Our research grants support investigations that can unravel mysteries of the disease and improve the quality of life for all people affected by dementia. The Association's International Conference on Alzheimer's disease and related disorders beings together the greatest minds in dementia research from around the world. Providing support, information, and referral The Alzheimer's Association provides a broad range of programs and services for people with the disease, families, care partners, residential care professionals, and professional health care providers. Highlights of our programs include the following: • The Contact Center, a toll-free service, available 24 hours a day, seven days a week, to families, health care professionals, and the general public across the country. • Safe Return, a nationwide identification program to assist in the safe and timely return of individuals who have wandered from home, as well as other safety information services, such as home safety and driving. • More than 100,000 hours of education, service, and support programs • The Alzheimer's Association library and resource center, dedicated exclusively to Alzheimer's disease, which provides reference and research services, reading lists, and video guides on Alzheimer-related topics Providing answers The Alzheimer's Association staff and volunteers can provide information about a number of dementia-related issues: • The science of Alzheimer's disease and related disorders • Medications and other treatment options • Skills to provide quality care • Strategies to reduce stress and manage lifestyle changes • Legal, financial, and living-arrangement decisions • Clinical trials of potential treatments • Medicare and Medicaid benefits • Professional and community services • Safety services Advocating for change The Alzheimer's Association represents the interests of people with the disease and their families before all levels of government and with health care and long-term care providers. In Hawaii ...who we are...what we do our mission to eliminate Alzheimer's disease through the advancement of research and to enhance care and support for individuals, their families, and caregivers our vision to create a world without Alzheimer's disease. our pledge to the community we will be the primary resource for Alzheimer's disease and related disorders through family services, education, public policy and research focus as more persons are diagnosed with Alzheimer's disease, we will reach out to provide services to those individuals and their families The Alzheimer's Association is the premiere source of information and support for the 28,000 people in Hawaii struggling with Alzheimer's disease and related dementias. The association is the only organization in Hawaii that is dedicated solely to helping people with the disease, and of equal importance, to their families and caregivers. Alzheimer's Association programs and activities include: ? Helpline - a 24-hour information, referral and emotional support telephone program with a toll free number for neighbor island folks. Staff and volunteers lend a listening ear to caregivers, suggest resources and provide basic information on diagnosis, symptoms and understanding Alzheimer's disease, managing difficult behaviors and new drug treatments. Callers seek referrals to nursing facilities, respite and adult day care, qualified sitters, legal and medical options, home health services, and other available options. After hours calls are linked with the National Alzheimer's Association's Contact Center with access to over 145 languages. ? Free Family Care Consultations - Office consults and home visits provide assessment, long-term care planning, and support for family members and persons with dementia. Families and caregivers receive support, education, and training to better understand Alzheimer's disease and other forms of dementia, behaviors resulting from all forms of dementia, how best to deal with such behaviors and where to turn for support within the community. ? Education and Training for family caregivers, professional caregivers and the general 2 public. Introductory individualized educational sessions are designed for persons who are newly diagnosed, their families and caregivers. Individualized educational sessions are offered for those who contact the Chapter for the first time. Special programs are held to train health care personnel on the special needs of memory impaired people and intervention for difficult behaviors and other commonly encountered problems. ? Community Presentations - Community education is provided by qualified, experienced staff and volunteers. Presentations are arranged for schools, churches, service clubs, businesses, and other community organizations. ? Resource Library with over 100 reference items available to the public. More than 25 free publications. Reference guides, books, videos are available for review, and more than 400 books and videos are available for loan. Some materials are available in several languages. ? Quarterly newsletter - Each issue presents information on chapter programs and services, current research on Alzheimer's disease and relevant public policy issues ? Safe Return helps people with Alzheimer's disease who wander off and become lost by enabling police, community services agencies and private citizens to help them return home. Safe Return is a national program that works at the community level. This nation- wide database is accessible 24/7 through an 800 number. Identification jewelry and materials are provided. ? Neighborhood support groups - Family members and caregivers have the opportunity to share information, develop caregiving skills, and provide mutual support in a small group setting. Coping with Alzheimer's disease or related disorder does not have to be a lonely experience, although it is common to feel alone, to think that no one can understand what is happening. Participating in a family support group can help. By giving caregivers an opportunity to share feelings with others who do understand because they too have a loved one with dementia. Caregivers meet in a non judgmental, confidential and sympathetic environment to share coping techniques, knowledge of the disease, awareness of community resources and fellowship. ? Website - Information about Alzheimer's disease, chapter services and links to the national website is available on www.alzhi.ore Through these core services, the Alzheimer's Association provides ? Orientation to the disease ? Support with managing the illness ? Information on available programs and services ? Access to emerging research and treatment information. Providing answers The Alzheimer's Association staff and volunteers provide information about a number of dementia related issues: • The science of Alzheimer's disease and related disorders 3 • Medications and other treatment options • Skills to provide quality care • Strategies to reduce stress and manage lifestyle changes • Legal, financial, and living-arrangement decisions • Clinical trials of potential treatments • Medicare and Medicaid benefits • Professional and community services • Safety services The Alzheimer's Association is dedicated to the prevention, cure and treatment of Alzheimer's disease and related disorders, as well as to providing support and assistance to individuals with Alzheimer's disease and related dementias and their caregivers. 4 ALOHA CHAPTER OFFICES The Alzheimer's Association - Aloha Chapter 1050 Ala Moana Blvd., D15 Honolulu, Hawaii 96814 Monday-Friday, 8:30 a.m. - S: 00 p.m. Or by appointment Phone: (808) 591-2771 Fax: (808) 591-9071 24/7 Helpline: (800) 272-3900 HAWAII COUNTY OFFICE HONOLULU COUNTY OFFICE 944 W. Kawailani Street 1050 Ala Moana Blvd., D15 P.O. Box 271 Honolulu, Hawaii 96814 Hilo, Hawaii 96721 Monday-Friday, 8:30 am - 5:00 pm Or by appointment Or by appointment Phone: (808) 981-2111 Phone: (808) 591-2771 Fax: (808) 921-5900 Fax: (808) 591-9071 KAUAI PROGRAM OFFICE MAUI COUNTY OFFICE 4303 Rice Street, C2 Puuone Plaza Kapaa, Hawaii 96766 1063 Lower Main Street, C-206 Or by appointment Wailukui, Hawaii 96793 Phone: (808) 245-3200 Monday-Friday, 8:30 am-5:00 pm Fax: (808) 821-2696 Or by appointment Phone: (808) 871-5150 Fax: (808) 871-6268 ADMINISTRATIVE PERSONNEL ALOHA CHAPTER - Honolulu Janet Eli, President and Chief Executive Officer Allen Arakaki, CPA, Finance (outsourced) Dave Hamil, Vice President of Development Elaine Slavinsky, MEd, MPH, RN, Vice President of Programs (Acting) Edie Hanohano, Diversity & Resources Coordinator Donny Manuel, Family Programs Specialist MAUI PROGRAM OFFICE Elaine Slavinsky, MEd, MPH, RN, Program Coordinator Susan Reyes, Memory Walk Coordinator HAWAII PROGRAM OFFICE Janet Schmuckal, Education & Training Coordinator Cindy Kennedy, West Hawaii Diversity & Resource Coordinator KAUAI PROGRAM OFFICE Kathy Jo Yap, Education & Training Coordinator 5 BOARD OF DIRECTORS The Board of Directors consists of non-compensated individuals who have the responsibility to oversee the policy, management and financial well being of the agency. Through the by-laws, the Board of Directors set policy, rules and regulations. Each Board member may serve three consecutive two-year terms. The Board of Directors meet monthly at regularly appointed times and locations throughout the fiscal year. OFFICERS Thomas P. Brehm, Chair Candy Aluli (Maui), First Vice Chair Bret Flynn, MD, MPH, Second Vice President Tricia Medeiros, Secretary Chris Shirai, Treasurer DIRECTORS Paul Brown John Doty Ronald Leong Garret Tom Noel Trainor CHAPTER STAFF OFFICERS President & Chief Executive Officer Janet Eli Vice President, Development Dave Hamil Vice President, Programs Elaine Slavinsky, MEd, MPH, RN Vice President, Finance Outsourced to Allen Arakaki, CPA 6